Case Register

The Case Register holds the names of volunteers interested in research into dementias and neurodegenerative diseases. When there is a suitable study, people on the Case Register may be asked if they would like to take part, and carers can also sign up to be contacted about research opportunities. People can also sign up to be contacted about research using ‘healthy controls’.

What happens to my information

Your information will be stored securely on a Cumbria, Northumberland, Tyne and Wear NHS Foundation Trust server and is only accessed by authorised Clinical Research Network (CRN) staff. Your personal information will be held in an electronic folder and excel database. The database helps us search all our volunteers at once to match them to study criteria more easily.

You can find more information about how the Trust process your personal data here.

For more information around the Case Register, or to sign up to be a healthy control volunteer, please contact [email protected]